Why do I have energy at times when I can rest, but when I rest I have too much energy?

How Dealing with Chronic Fatigue affects my life

 

Hello and Good Morning/Evening and Welcome to Afterthoughts, (WCMF).  Since I missed Manic Monday and was late with Sundays and Smalltalk, I thought that talking about chronic pain and fatigue would be a great topic, plus, some things I try to do to make my nights rest as comfortable as possible.

 

The last few days I haven’t been feeling that well, and after going grocery shopping on Monday, then by the time we were back, I felt like I ran the mile.  So exhausted, and also getting a little bit of house work, had me in bed, not just in bed, but passed out asleep.  Apparently, I was that tired and this lasted until today, just eating, restroom, sleep.  I don’t know what is happening, sometimes too much sleep is a sign of infection somewhere, but somehow both my appointments today canceled.  Gratitude, that is what I have to say is Gratitude.

My dad came from out of town to take me to the store, we talked over lunch and went to do kids back to school shopping.  I really was so tired, but spending that time with my Dad, was worth it all.  I am really grateful to him, my mother, and it was just a lot, clothes shoes, supplies, thank goodness I had my daughter there to help out.

When pain like this acts up, I feel so tired and lacking of any energy.  I mopped my kitchen and dining room, the day before yesterday.  So today, now really exhausted and my arms and shoulders, into my back hurt so much, but I am fighting to work through it, I can’t work out like I used to, but I am going to push through. Yes I have kids, however it sometimes easier to do the chores because I am picky, but I do enlist them for help all the time.

Now that my schedule is all out of place, I am going to put it back together.  Try to sleep a normal and reasonable amount of time, and just make some adjustments.  I have been cheating on my coffee limits, so I must go back to 2 cups a day and stopping by 3 in the afternoon.  When I worked I used to drink Coffee All day and now I can’t do that anymore..  I will be up all night and my pain is really bad.  By doing a couple of things at night, tea (relaxing) easy listening music or something to watch on the TV, doing things that relax me and not bring stress to me.

Before my Mesh Implant Complications, I had an amazing life, that I worked really hard for.  Now, I am struggling but I am not broken either.  I know that there isn’t anything that can be done now, so I just take things slowly so I don’t want to get hurt.  Everyday I get with my family is a blessing ; and I am going to beat this mesh, as long as I am alive, won’t let it beat me.

Finally when I took the picture (above: me) I really didn’t think anything of it, thought it was different, but the truth is I don’t have any teeth right now.  At my age, my teeth, they all just kept breaking down and now I have to get false teeth, in the process of it now.  I ended up with abscessed tooth and I have emergency surgery to have the rest removed.   Now I am seeing people around the world talking about how they lost their teeth after mesh was implanted. I don’t know for sure if mesh implants causes teeth decay, but if it does, just another thing to add to the list of side effects that we as patients, are suffering with.

Thank you to everyone following my blog.  After accepting that pain was going to be a part of my life forever, I started slowly changing things within a comfort zone, mental and physical.    Ex” I mopped both kitchen and dining, now I am going to declutter and start the remodeling.  Just to clarify, we are renting so nothing major than just redecorating with updated pictures.  I want my dining room to look like an old place friends can come and enjoy with us.

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My Cat, Sassy, she likes to sit everywhere.  Most of the time when we have company over, my kitchen table becomes the heart of our home. This table belonged to my grandparents on my Dad’s side, and I would love to restore it, sometime in the future, but redoing my dining room will be fun, and  It will  keep me distracted from the pain hopefully, and maybe I can get some fun stuff done.  My pain is nuts, so hopefully I can get some relief and not have to go a hospital.  😦

I usually do my VLOG, Impromptu on Thursdays, so my plan is to be back a little earlier to bring you my VLOG, my readers and listeners, I would love to hear your idea’s.  This is if my pain doesn’t interfere again.  I know it’s not easy to talk about having a TVM, but I believe we are stronger together.  Transvaginal Mesh Implants hurt people both physically and mentally.  If I can’t get medical care from my doctor tomorrow, off to the emergency room.  If I go, it will be because I felt I had no other choice because of the pain, that’s usually when I have to go.  If that happens I will let everyone know if I can what is happening.

I would like to give a special Thank You  to everyone for your concerns & support, A Special Thank you to my family, the support helps m  Hello to my new followers on social media and here on Word press, I am happy that I can share my TVM Mesh Journey.  I couldn’t do this without everyone on social media and having my blog, please share it, if you know anyone who suffers with the side effects from a Transvaginal Mesh..  When I started this, it was just a Facebook page, then I decided to do a blog on my mesh Journey, from there oh man, everyday the numbers keep going up and I am so grateful for you all letting share with you my stories, which isn’t finished, I think I am just getting started.  I have been through so much and I want other patients to know they are not alone.

I love you all and blessings to you,

You can find me social media and Google +.  Going to try and get some answers on my insomnia and until tomorrow night, thank you all for reading.

Michelle Hedgcoth, Co-Founder of westcoastmeshfighter, graphic designer, writer, Transvaginal Mesh Warrior & Survivor,

 

 

How do I create a new happy adjusted life living with Transvaginal Mesh limitations?

Hello Good Evening/Morning to everyone and welcome to Afterthoughts, for Westcoastmeshfighter.  Tonight’s subject is about your self worth and work.  Most of us were different people, with different outlooks about our life and what we wanted it to be.  Then the mesh implants started to cause severe pelvic pain, constipation, infections, auto immune disorder, mesh revisional, physical Therapy for my Pelvic Floor.

cafe cupCool graphic I found online., Coffee in my favorite color.

So here begs the question:  How can we live an enjoyable life living with chronic pain?  Well if I had the entire answer, I probably would be living a whole lot better than our family is living right now,  being able to feed my kids without worry, have money pay for a place in a good neighborhood with a good school and just to live the life I used too.  At some point I had to admit that I was human and get some help to deal with all the stress.

Ok in reality, just having a place to live is a blessing and constantly we make it through situation that could have avoided if I never became injured.  I have prayed and prayed for guidance from god.  One you awaken your inner soul your truth will guide you to better things, but change always has to happen.  Unhealthy decisions will never get you to a place where you can say you earned it.  I can’t do that anymore, but I know I can help others.

tbnotetoself

 

First and foremost I wanted to say is I am catholic and I want to thank God for the many blessings he has given our family as we continue with the journey.  I thought to myself, so you lost your life everything.  I really thought about this and there are a couple of ways of approaching this controversial  issue.  I know I have made mistakes along with way regarding medical decisions, however I cannot go back and change anything, so I choose to move forward.  My pain is really bad so I will wrap this u.

End after Graphic.

the war of Art

Cont…

Living with chronic pain isn’t easy, it seem that as my pain is getting worse, the more I want stay in bed.  I am working on changing these behaviors that are not healthy for me or my family.  I have already made the appointment to go to my internal medicine Doctor and I received a letter indicating that my urogynocologist isn’t’ going to treat patients in our dept. anymore@ UC Davis,,  They did offer alternative doctors and will have to call later this morning to deal with that.

It’s hard to love yourself, I know not everyone can shut down their emotions or pain, so it’s a trial and error.  I have been through so much and I am living life day by day instead of planning every little thing. Now I have started to have memory loss and I can’t remember some of the things that has happened in the last two week, this has been going on for a while now.  Some of my days are good and some are terrible. Each person has different disabilities and we can no longer work.  What I don’t understand is how can this be.  I haven’t gone to work since September 30, 2013 due to medical reasons, so I am rehire able, however my problem isn’t fixed and I don’t know if it will ever be.  I am really trying to make the best of it all.

it doesn’t stop me from trying.  I just go with the flow with things, I have a  bag packed just in case I have to leave my house in a hurry or go to the hospital.  I try not to plan things that I can’t over come.

 

It’s hard for anyone to understand chronic pain unless of course you live with it everyday.  I Encourage everyone to make sure you have a support system like family and friends to help you.  I also encourage that you have a plan just in case, It’s not easy but a lot of towns have food banks know that catholic churches gives you two nice bags of food and fruit and breads and deserts and they have clothes..  I encourage everyone to check for that in your home town, it helps that they can help out families in need.  I hope you all  have a wonderful week and I will be back tomorrow with Manic Monday… Hugs and Blessings Mesh Warrior.

Thank you for reading and until next time mesh warriors..

Mrs. Michelle Hedgcoth, Co founder of WCMF, advocate for patient rights and Humanitarian for chronic pain patients.  Thank you again. #westcoastmeshfighter, #tvmwarriorandsurvivor, #wearestrongertogether