Why do I have energy at times when I can rest, but when I rest I have too much energy?

How Dealing with Chronic Fatigue affects my life

 

Hello and Good Morning/Evening and Welcome to Afterthoughts, (WCMF).  Since I missed Manic Monday and was late with Sundays and Smalltalk, I thought that talking about chronic pain and fatigue would be a great topic, plus, some things I try to do to make my nights rest as comfortable as possible.

 

The last few days I haven’t been feeling that well, and after going grocery shopping on Monday, then by the time we were back, I felt like I ran the mile.  So exhausted, and also getting a little bit of house work, had me in bed, not just in bed, but passed out asleep.  Apparently, I was that tired and this lasted until today, just eating, restroom, sleep.  I don’t know what is happening, sometimes too much sleep is a sign of infection somewhere, but somehow both my appointments today canceled.  Gratitude, that is what I have to say is Gratitude.

My dad came from out of town to take me to the store, we talked over lunch and went to do kids back to school shopping.  I really was so tired, but spending that time with my Dad, was worth it all.  I am really grateful to him, my mother, and it was just a lot, clothes shoes, supplies, thank goodness I had my daughter there to help out.

When pain like this acts up, I feel so tired and lacking of any energy.  I mopped my kitchen and dining room, the day before yesterday.  So today, now really exhausted and my arms and shoulders, into my back hurt so much, but I am fighting to work through it, I can’t work out like I used to, but I am going to push through. Yes I have kids, however it sometimes easier to do the chores because I am picky, but I do enlist them for help all the time.

Now that my schedule is all out of place, I am going to put it back together.  Try to sleep a normal and reasonable amount of time, and just make some adjustments.  I have been cheating on my coffee limits, so I must go back to 2 cups a day and stopping by 3 in the afternoon.  When I worked I used to drink Coffee All day and now I can’t do that anymore..  I will be up all night and my pain is really bad.  By doing a couple of things at night, tea (relaxing) easy listening music or something to watch on the TV, doing things that relax me and not bring stress to me.

Before my Mesh Implant Complications, I had an amazing life, that I worked really hard for.  Now, I am struggling but I am not broken either.  I know that there isn’t anything that can be done now, so I just take things slowly so I don’t want to get hurt.  Everyday I get with my family is a blessing ; and I am going to beat this mesh, as long as I am alive, won’t let it beat me.

Finally when I took the picture (above: me) I really didn’t think anything of it, thought it was different, but the truth is I don’t have any teeth right now.  At my age, my teeth, they all just kept breaking down and now I have to get false teeth, in the process of it now.  I ended up with abscessed tooth and I have emergency surgery to have the rest removed.   Now I am seeing people around the world talking about how they lost their teeth after mesh was implanted. I don’t know for sure if mesh implants causes teeth decay, but if it does, just another thing to add to the list of side effects that we as patients, are suffering with.

Thank you to everyone following my blog.  After accepting that pain was going to be a part of my life forever, I started slowly changing things within a comfort zone, mental and physical.    Ex” I mopped both kitchen and dining, now I am going to declutter and start the remodeling.  Just to clarify, we are renting so nothing major than just redecorating with updated pictures.  I want my dining room to look like an old place friends can come and enjoy with us.

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My Cat, Sassy, she likes to sit everywhere.  Most of the time when we have company over, my kitchen table becomes the heart of our home. This table belonged to my grandparents on my Dad’s side, and I would love to restore it, sometime in the future, but redoing my dining room will be fun, and  It will  keep me distracted from the pain hopefully, and maybe I can get some fun stuff done.  My pain is nuts, so hopefully I can get some relief and not have to go a hospital.  😦

I usually do my VLOG, Impromptu on Thursdays, so my plan is to be back a little earlier to bring you my VLOG, my readers and listeners, I would love to hear your idea’s.  This is if my pain doesn’t interfere again.  I know it’s not easy to talk about having a TVM, but I believe we are stronger together.  Transvaginal Mesh Implants hurt people both physically and mentally.  If I can’t get medical care from my doctor tomorrow, off to the emergency room.  If I go, it will be because I felt I had no other choice because of the pain, that’s usually when I have to go.  If that happens I will let everyone know if I can what is happening.

I would like to give a special Thank You  to everyone for your concerns & support, A Special Thank you to my family, the support helps m  Hello to my new followers on social media and here on Word press, I am happy that I can share my TVM Mesh Journey.  I couldn’t do this without everyone on social media and having my blog, please share it, if you know anyone who suffers with the side effects from a Transvaginal Mesh..  When I started this, it was just a Facebook page, then I decided to do a blog on my mesh Journey, from there oh man, everyday the numbers keep going up and I am so grateful for you all letting share with you my stories, which isn’t finished, I think I am just getting started.  I have been through so much and I want other patients to know they are not alone.

I love you all and blessings to you,

You can find me social media and Google +.  Going to try and get some answers on my insomnia and until tomorrow night, thank you all for reading.

Michelle Hedgcoth, Co-Founder of westcoastmeshfighter, graphic designer, writer, Transvaginal Mesh Warrior & Survivor,

 

 

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Hot Summer Friday Nights living with Transvaginal Mesh?

Hello and Good Evening/Morning and Welcome to Afterthoughts, West Coast Mesh Fighter. 

After a long week, I am happy to blog and talk about this heat wave we are having here in California.  It is ridiculous hot and staying in a temperature controlled room is imperative now because when I get too hot or too cold, everything seems to hurt more???   It’s now been three years since I have been able to go the beach (2hr) drive from here.  The Beach is my favorite place to relax and unwind.  I am not sure about everyone else, but my pain levels are really high and I almost had to go to the hospital a couple of nights this week, but thank you God, I am home. I really love the summer time because it’s so calming and relaxing that I can really get into dealing with my Chronic Pain.  Once I figured out how my body adapts to weather changes, I really had to make major changes.

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Hard Steps, but I work on this everyday.  It’s really easy to get into a mood where my pain and emotional state end up running me and it should be the other way around.  I spent almost 3 years in a deep depression.  I cut off all family and limited my contacts with friends, because I can’t do a lot of things the way I used to anymore, also it was assumed that I was addicted to drugs either prescription or recreational drugs (which I have never had an addiction problem) and that I was somehow making it all up to avoid working.  I have worked from the time I was 15 1/2yrs old and I actually am irritated because I can no longer work.  One thing I have come to realize is that having a mesh implant it has given me more patience and forgiveness for myself.

I was trusting my gut instinct and because I didn’t really know what was happening to me then,  I knew I couldn’t really explain to my family and friends exactly what was going on and that alone was a lot of anxiety and stress.  I feel really disconnected from my prior life as I knew it, now.  I did a lot of crying and a lot of soul searching, praying to God for guidance, then I knew what I needed to do.  Having a Transvaginal Mesh Implant has caused a lot of side effects.  My auto immune condition, fibromyalgia went from being manageable to completely out of control

Foods to avoid this summer and Foods to love

Anything that can cause Gas pains:

  1. Broccoli, beans, cheese, dairy, whole grains, Brussels sprouts, broccoli, cabbage, asparagus, and cauliflower are known to cause gas.  I definitely would talk to my doctor or nutritionist about what foods you should illuminate.
  2. Fruits such as apples, peaches, pears, and prunes contain the natural sugar alcohol, sorbitol, which the body has trouble digesting. Many fruits also have soluble fiber, which is a type of fiber that dissolves in water. Sorbitol and soluble fiber must both also pass through the large intestines, where bacteria break them down to create hydrogen, carbon dioxide, and methane gas.  I was really taken back because prunes help pass things along.
  3. Sodas and other carbonated drinks can add significantly to the amount of air you swallow. When air gets into your digestive tract, it has to pass through somehow. This causes burping and may also increase how much gas you pass. Swapping soda for juice, tea, or water (with no carbonation) may help you reduce gas.
  4. Processed foods are packaged goods, such as breads, snack foods, cereal, and salad dressing. These contain a variety of ingredients, including fructose and lactose. This combination can lead to increased gas.

Summer time includes so many things, flip flop weather, and having family bbq’s to water/theme parks and having to watch what I eat is tough, but for my digestion system I am willing to make the sacrifice’s.  I love salads with fresh vegetables and organic dressings nothing too heavy.  Watermelon, oranges, grapes… I have it on a schedule where I can eat some things and take it easy like every other day, but it varies.

lactaideverything

We digest food differently so it’s really a process of trial and error to see what food affect you and how they affect you.  I changed my milk products to Lactaid and most Coffee Creamers are being made where these ingredients are not in them anymore.  Finances have really played a role in all of these things that I do to make life a bit easier.  I am looking forward to a trip to the beach soon.  Most of my pain comes from the rectal side, I get inflammation in my Colon, the pain is unreal when it acts up which is everyday.

A new video will be coming soon, it is a new project I am working on continuing it and It’s a lot of fun to do.  If there are any questions, or comments, please ask away.  I will always do my best to either get answers or investigate further.

I will definitely be blogging on Sunday’s and Smalltalk, Manic Mondays and with all the stress that comes with battling this complicated condition, there is room for some happy.  Without happiness, misery will surely take over.  We are here and it’s ok to live our life’s as best as we can.  Good is good enough and forgiveness within my self helps me to walk through this journey with purpose.  Thank you all for reading tonight and I hope everyone has a wonderful weekend.

Yes it’s time for Meme of the Week.   I did two this week.  I hope you like them.  If you have any suggestions on mesh meme’s please comment with your ideas. 

Ref:  free images, meme creator,

http://www.healthline.com/health/foods-that-cause-gas

 

M. Hedgcoth, co founder of WCMF.  Transvaginal Mesh Warrior and Survivor. God bless you.  Dedicated to John Aguilar, Rest In Peace Cousin, you will be missed everyday.  I love you. 

john john final.John John Aguilar…jjnoahashlee