How becoming an Advocate for TVM Patients, may have saved my Emotional Life.

Hello and Good Evening/Morning and welcome to Sundays and Small talk, where I am stuck between two worlds living with Transvaginal Mesh.  I hope everyone is well and looking forward to watching the Eclipse tonight and tomorrow.  I spent some down time this weekend as I haven’t been feeling as well as I would like.  I did some research online and found out some interesting things about my Mesh Device, which is no longer on the market, recalled by the manufacturer and also found out updated info regarding the on going Litigation.  After googling one of my many side effects, I fell into the internet trap of going on one thing, then to another with the first one still not answered, it became too much and I had overload.  Yes it happens, too much info is not always good sometimes.

I am still researching county options for aftercare, where I live, and it’s been a very rocky rough start to the changes I made personally regarding my medical team.  To Clarify, it’s been a year since I first started making changes in regards to my Physical and Mental Health.   I know there a stigma, however I never knew how bad it was until I had a few really bad experiences with Medical Staff here in my county regarding my health.

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I know who I was before and who I am now, and who I almost became.  They have a great deal to do with my mental state of mind now on healthcare & treatment of patients.  Everyday now, I struggle with so many things related to the mesh in some regard and everything that surrounds me and one of my biggest struggles is Trust, once my doctors started failing me, after the insurance change.  (this happened because I know longer had my health insurance from my employer)  I had to move to Medi-cal.  Then my nightmare really began and by misleading me, or telling me one thing and turning out it’s another, how I was treated at work before I was forced into a disability status, and how alone things can seem.  Let down, after let down, I felt like I was going a bit crazy, because no one could tell me anything.  Here I am, it’s been almost 8 years since my original surgery and has been quite a roller coaster since then.

I really want to get more specific on my experiences regarding how my care was and how it is progressing now.  It’s on the discussion block, brainstorming table, so to speak.  It’s been about 3-4 months since I began this journey of going public with my story and since then I have started a YouTube Channel, which I want to do more Vlogging, also I am on Instagram, Twitter, Pinterest, and G+ and Facebook, where this all started.  I really didn’t see myself even talking about this, let alone, advocating, writing, researching, talking to patients and just learning how to deal with my conditions.  I really want to bring hope, inspiration, and in that, rid the status quo factor, and that it won’t play such a role in our healthcare, and how we are judged and treated as patients.

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Believe or Not, there has been some positive’s too.  I was able to get Pelvic Floor Physical Therapy.  My PT, she was amazing and although I am not doing my exercises enough, I have restarted goals.  I know I have relapsed several times because of pain, infections and I still could again, sometimes hospitalization for IV Therapy.

I also have been in Emotional Therapy for a year and a half, looking back, it’s hard to see where all that time went.

Eating changes to gluten free, organic, and Lactose changes, no more dairy.  It’s really easy to get discouraged, I still deal with extreme pain and suffering, that never ends.  I know that everyone’s journey is different, but by sharing my story and experiences, it may just help someone, it can save a life..  The side effects of Mesh Implants, have driven patients to suicide because of chronic pain.

Thank you for reading and until next time, stay safe, and peace be with you all.

M. Hedgcoth Co-Founder of Westcoastmeshfighter, Mesh Advocate for Patients, Families and Friends of anyone who suffers from the underlining conditions/side effects from a Transvaginal Mesh Implant.

Book status… still in progress


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